Browsing by Author "Graff, M.J.L."

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Perceive, Recall, Plan and Perform (PRPP)-Assessment Based on Parent-Provided Videos of Children with Mitochondrial Disorder: Action Design Research on Implementation Challenges.
Lindenschot, M. ; Groot, I.J.M. de ; -van der Sanden, M.W.G. Nijhuis ; Steultjens, E.M.J. ; Graff, M.J.L. ; Koene, S.
2023, Article / Letter to editor (Physical and Occupational Therapy in Pediatrics, vol. 43, iss. 1, (2023), pp. 74-92)AIMS: Performing the Perceive, Recall, Plan and Perform (PRPP)-Assessment, using video material of everyday life, seems sensible to lower the patient burden, enhance ecological validity, and provide care at a distance. However, receipt of adequate video material is not self-evident and assessing videos can be challenging. Therefore, this study aims to optimize the process of gaining video material and to optimize the PRPP-Assessment based on parent-provided videos. METHODS: An action design research method was used, focusing on implementation of the PRPP-Assessment based on parent-provided videos within the care of children with a mitochondrial disorder or similar symptoms. RESULTS: Five cycles were conducted. To receive input, the cycles used videos of nine children performing activities, written feedback, and semi-structured interviews and focus groups comprising parents (nn=n13), a teacher (nn=n1), occupational therapists (nn=n16), and other professionals (nn=n2) . This led to successful implementation of the PRPP-Assessment. General lessons were learned on (1) instructing parents; (2) handling video material; (3) PRPP-Assessment based on parent-provided videos; and (4) PRPP-Assessment of children (with limited functional abilities). CONCLUSIONS: Lessons learned should be implemented in practice and are incorporated into a manual to guide the implementation of video-based observations with PRPP-Assessment in practice.
Collaboration for Developing and Sustaining Community Dementia-Friendly Initiatives: A Realist Evaluation
Thijssen, M.C.E. ; Graff, M.J.L. ; Lexis, M.A.S. ; Nijhuis-van der Sanden, M.W.G. ; Radford, K. ; Logan, P. A. ; Daniels, R. ; Kuijer-Siebelink, W
2023, Article / Letter to editor (International Journal of Environmental Research and Public Health, vol. 20, iss. 5, (2023))
What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case study
Thijssen, M.C.E. ; Kuijer-Siebelink, W ; Lexis, M.A.S. ; Nijhuis-van der Sanden, M.W.G. ; Daniels, R. ; Graff, M.J.L.
2023, Article / Letter to editor (BMC Public Health, vol. 23, iss. 1, (2023), pp. 296)
Enhancing the role of the social network in activity (re)engagement post-stroke: a focus group study with rehabilitation professionals.
Veen, D.J. van der ; Jellema, S. ; Wees, P.J. van der ; Graff, M.J.L. ; Swart, B.J.M. de ; Steultjens, E.M.J.
2022, Article / Letter to editor (BMC Primary Care, vol. 23, iss. 1, (2022), pp. 285)
The reliability and validity of the perceive, recall, plan and perform assessment in children with a mitochondrial disorder.
Lindenschot, M. ; Koene, S. ; Nott, M.T. ; -van der Sanden, M.W.G. Nijhuis ; Groot, I.J.M. de ; Steultjens, E.M.J. ; Graff, M.J.L.
2022, Article / Letter to editor (Disability and Rehabilitation, (2022), pp. 1-14)PURPOSE: To investigate the reliability and validity of the Perceive, Recall, Plan and Perform System of Task Analysis (PRPP-Assessment) by parent-provided videos of children with mitochondrial disorders. METHODS: Videos of 13 children performing 3-7 activities each were the subject of study, resulting in 65 activities. These were scored using the PRPP-Assessment by 11 raters. Internal consistency was calculated with Cronbach's alpha. Intra-rater reliability was evaluated by Bland-Altman Plots on 44 PRPP-Assessment scores. Inter-rater reliability was calculated with ICC(Agreement) on 128 PRPP-Assessment scores. Construct validity was assessed by comparing the PRPP-Assessment scores to the Canadian Occupational Performance Measure using Cohen's Kappa. PRPP-Assessments scores were evaluated with a multi-faceted Rasch Analysis. RESULTS: Internal consistency was high (0.92). Intra-rater reliability was sufficient to be good (92-96% within the 95%-Limits of the Agreement). The ICC(Agreement) for stage 1 Mastery Score showed acceptable inter-rater reliability (0.646). Stage 2 of the PRPP-Assessment showed low ICCs due to a lack of variability within the sample. Four out of six hypotheses on validity were accepted. Rasch's analysis demonstrated sound goodness-of-fit, and supported the validity of the PRPP-Assessment. CONCLUSION: The PRPP-Assessment by parent-provided videos in this heterogenic group showed sufficient to good psychometric properties. In practice, careful task selection and formulating criterion is recommended.Implications for RehabilitationPRPP-Assessment by parent-provided videos is reliable and valid in the complex, heterogenous group of children with mitochondrial disordersThe PRPP-Assessment is suitable for children with mitochondrial disorders as it showed to contain familiar, functional and meaningful tasks and activities that fit with their level of functioningProfessionals should be aware that parents might not be used to the criterium-based frame of reference of the PRPP-AssessmentWhen applying the PRPP-Assessment, it is recommended to be careful in task selection and formulating the criterion.

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