Browsing by Author "Nijhuis-van der Sanden, M.W.G."

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A Blended Electronic Illness Management and Recovery Program for People With Severe Mental Illness: Qualitative Process Evaluation Alongside a Randomized Controlled Trial
Gaal, B.G.I. van ; Vermeulen, H. ; Nijhuis-van der Sanden, M.W.G. ; Goossens, P.
2021, Article / Letter to editor (JMIR Research Protocols, vol. 8(1), iss. e20860, (2021))
Identifying the minimal important difference in patient-reported outcome measures in the field of people with severe mental illness: a pre-post-analysis of the Illness Management and Recovery Programme
Beentjes, T.A.A. ; Teerenstra, S. ; Vermeulen, H. ; Goossens, P. ; Nijhuis-van der Sanden, M.W.G. ; Gaal, B.G.I. van
2021, Article / Letter to editor (Quality of Life Research, (2021))Purpose Complementary interventions for persons with severe mental illness (SMI) focus on both personal recovery and illness self-management. This paper aimed to identify the patient-reported outcome measures (PROMs) associated with the most relevant and meaningful change in persons with SMI who attended the Illness Management and Recovery Programme (IMR). Methods The effect of the IMR was measured with PROMs concerning recovery, illness self-management, burden of symptoms and quality of life (QoL). From the QoL measures, an anchor was chosen based on the most statistically significant correlations with the PROMs. Then, we estimated the minimal important difference (MID) for all PROMs using an anchor-based method supported by distribution-based methods. The PROM with the highest outcome for effect score divided by MID (the effect/MID index) was considered to be a measure of the most relevant and meaningful change. Results All PROMs showed significant pre-post-effects. The QoL measure 'General Health Perception (Rand-GHP)' was identified as the anchor. Based on the anchor method, the Mental Health Recovery Measure (MHRM) showed the highest effect/MID index, which was supported by the distribution-based methods. Because of the modifying gender covariate, we stratified the MID calculations. In most MIDs, the MHRM showed the highest effect/MID indexes. Conclusion Taking into account the low sample size and the gender covariate, we conclude that the MHRM was capable of showing the most relevant and meaningful change as a result of the IMR in persons with SMI.
Educational programs for learning to observe movement quality in physical therapy: a design-based research approach
Dekkers, L.M.A. ; Satink, T. ; Nijhuis-van der Sanden, M.W.G. ; Swart, B.J.M. de ; Maas, M.J.M. ; Janssen, Astrid
2020, Article / Letter to editor (Physiotherapy Theory and Practice, (2020))Introduction: Movement observation is a core aspect in physical therapists' diagnosis to determine which interventions are adequate to improve functional abilities. The aim of this study was to derive design principles for an educational program for the development of observational skills. Methods: We used a qualitative approach within a design-based research methodology. In four rounds, 8 physical therapy students, 16 teachers, and 9 practitioners participated in five Nominal Group Technique meetings and six interviews. Meetings and interviews were transcribed verbatim and analyzed using thematic analysis. Results: We identified three themes, each with several design principles: (1) didactics; (2) professional content; and (3) conditions for optimal learning. We developed a proto-theory underpinned with underlying educational theories. Conclusions: To learn observational skills, students, facilitated by an experienced teacher, need to take the lead in their own learning process. This might imply a need for additional training for teachers. A realistic context is a precondition for learning; it might be necessary to increase possibilities for observations in clinical contexts or to invest in training for (simulated) patients as participants in education. Further research is needed to test the applicability of the design principles and a proto-theory for other professionals with a focus on observation and analysis of movements.
Room for improvement in non-pharmacological systemic sclerosis care?—a cross-sectional online survey of 650 patients
Stöcker, J.K. ; Vonk, M.C. ; Hoogen, F.H.C. van den ; Nijhuis-van der Sanden, M.W.G. ; Staal, J.B. ; Satink, T. ; Ende, C.H.M.
2020, Article / Letter to editor (Rheumatology, vol. 4, iss. 1, (2020), pp. 1-9)
Experienced consequences of spasticity and effects of botulinum toxin injections: a qualitative study amongst patients with disabling spasticity after stroke
Kerstens, H.C.J.W. ; Satink, T. ; Nijkrake, M.J. ; Swart, B.J.M. de ; Nijhuis-van der Sanden, M.W.G. ; Wees, Philip van der ; Geurts, A.C.H.
2020, Article / Letter to editor (Disability and Rehabilitation, (2020))Purpose:Chronic spasticity poses a major burden on patients after stroke. Intramuscular botulinum toxin injections constitute an important part of the treatment for patients suffering from troublesome focal spasticity. This study explores the experienced consequences of chronic spasticity amongst patients after stroke regarding physical impairments and activities, the experienced effects of botulinum toxin treatment on these domains, and whether current spasticity management addresses patients' needs. Materials and methods:Fourteen participants with chronic spasticity after stroke who were treated with cyclical botulinum toxin injections in the upper and/or lower extremity muscles were interviewed. Inductive thematic analysis generated representative themes. Results:Analyses of the interviews revealed three themes: (1) spasticity-related impairments and activity limitations; (2) fluctuations in spasticity related to botulinum toxin; (3) need for professional support and feedback. Besides motor impairments, participants experienced activity limitations in many domains of everyday life, with considerable day-to-day fluctuations. Moreover, treatment with botulinum toxin led to cyclical fluctuations in spasticity-related symptoms, which differed across participants. The participants called for shared responsibility for treatment, particularly regarding optimising the timing of injections. Conclusion:Incorporating patient-relevant outcomes into the current assessment of spasticity and monitoring these outcomes may improve spasticity management, particularly regarding the timing of botulinum toxin injections.
Self-management develops through doing of everyday activities-a longitudinal qualitative study of stroke survivors during two years post-stroke
Satink, T. ; Josephsson, S ; Zajec, J. ; Cup, Edith ; Swart, B.J.M. de ; Nijhuis-van der Sanden, M.W.G.
2020, Article / Letter to editor (BMC Neurology, vol. 16, (2020))Background: A description of the complexity of the process of self-management and the way stroke survivors give meaning to their process of self-management post-stroke is lacking. This study explores how stroke survivors managed their lives, gave meaning to their self-management post-stroke and how this evolved over time. Methods: Data was generated through participant observations and interviews of 10 stroke survivors at their homes at 3, 6, 9, 15 and 21 months post-discharge. A constant comparative method was chosen to analyse the data. Results: 'Situated doing' was central in stroke survivors' simultaneous development of self-management and their sense of being in charge of everyday life post-stroke. Doing everyday activities provided the stroke survivors with an arena to explore, experience, evaluate, develop and adapt self-management and being in charge of everyday activities and daily life. The influence of stroke survivors' partners on this development was sometimes experienced as empowering and at other times as constraining. Over time, the meaning of self-management and being in charge changed from the opinion that self-management was doing everything yourself towards self-managing and being in charge, if necessary, with the help of others. Moreover, the sense of self-management and being in charge differed among participants: it ranged from managing only at the level of everyday activities to full role management and experiencing a meaningful and valuable life post-stroke. Conclusions: The findings of this study indicate the doing of activities as an important arena in which to develop self-management and being in charge post-stroke. Stroke self-management programs could best be delivered in stroke survivors' own environment and focus on not only stroke survivors but also their relatives. Furthermore, the focus of such interventions should be on not only the level of activities but also the existential level of self-management post-stroke.
Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands
Lith, B.J.H. van ; Kerstens, H.C.J.W. ; Bemd, LAC van den ; Nijhuis-van der Sanden, M.W.G. ; Weerdesteyn, V. ; Smeets, R.J.E.M. ; Fheodoroff, K ; Warrenburg, BPC van de ; Geurts, A.C.H.
2020, Article / Letter to editor (Orphanet Journal of Rare Diseases, vol. 15, iss. 1, (2020))Background Hereditary spastic paraplegia (HSP) is a group of inherited disorders characterized by progressive spastic paresis of the lower limbs. Treatment is often focused on reducing spasticity and its physical consequences. To better address individual patients' needs, we investigated a broad range of experienced complaints, activity limitations, and loss of motor capacities in pure HSP. In addition, we aimed to identify patient characteristics that are associated with increased fall risk and/or reduced walking capacity. Methods We developed and distributed an HSP-specific online questionnaire in the Netherlands. A total of 109 out of 166 questionnaires returned by participants with pure HSP were analyzed. Results Participants experienced the greatest burden from muscle stiffness and limited standing and walking activities, while 72% reported leg and/or back pain. Thirty-five and 46% reported to use walking aids (e.g. crutches) indoors and outdoors, respectively; 57% reported a fall incidence of at least twice a year ('fallers'); in 51% a fall had led to an injury at least once; and 73% reported fear of falling. Duration of spasticity and incapacity to rise from the floor were positively associated with being a 'faller', whereas non-neurological comorbidity and wheelchair use were negatively associated. Higher age, experienced gait problems, not being able to stand for 10 min, and incapacity to open a heavy door showed a negative association with being a 'walker without aids' (> 500 m). Conclusions Our results emphasize the large impact of spastic paraparesis on the lives of people with pure HSP and contribute to a better understanding of possible targets for rehabilitation.
Opening the black box of non-pharmacological care in systemic sclerosis: a cross-sectional online survey of Dutch health professionals
Stöcker, J.K. ; Vonk, M.C. ; Hoogen, F.H.C. van den ; Nijhuis-van der Sanden, M.W.G. ; Spierings, J ; Staal, J.B. ; Satink, T. ; Ende, C.H.M.
2020, Article / Letter to editor (Rheumatology International, (2020))
Educational programs for learning to observe movement quality in physical therapy: a designbased research approach
Dekkers, L.M.A. ; Satink, T. ; Nijhuis-van der Sanden, M.W.G. ; Swart, B.J.M. de ; Maas, M.J ; Janssen, A.J
2020, Article / Letter to editor (Physiotherapy Theory and Practice, (2020), pp. 1-13)
Spinal manual therapy in infants, children and adolescents: A systematic review and meta-analysis on treatment indication, technique and outcomes.
Driehuis, F. ; Hoogeboom, T.J. ; Nijhuis-van der Sanden, M.W.G. ; Bie, R.A. de ; Staal, J.B.
2019, Article / Letter to editor (PLoS One, vol. 14, iss. 6, (2019))
Stumbling, struggling, and shame due to spasticity: a qualitative study of adult persons with hereditary spastic paraplegia.
Kerstens, H.C.J.W. ; Satink, T. ; Nijkrake, M.J. ; Swart, B.J.M. de ; Lith, B.J.H. van ; Geurts, A.C.H. ; Nijhuis-van der Sanden, M.W.G.
2019, Article / Letter to editor (Disability and Rehabilitation, vol. 13, (2019), pp. 1-8)
The decline in physical activity in aging people is not modified by gender or the presence of cardiovascular disease.
Achttien, R. ; Lieshout, J.V. ; Wensing, M. ; Nijhuis-van der Sanden, M.W.G. ; Staal, J.B.
2019, Article / Letter to editor (European Journal of Public Health, (2019))
Self-management support in cardiovascular consultations by advanced practice nurses trained in motivational interviewing: An observational study
Engelen, M.M. ; Dulmen, S. van ; Nijhuis-van der Sanden, M.W.G. ; Adriaansen, M.J.M. ; Vermeulen, H. ; Bredie, S.J.H. ; Gaal, B.G.I. van
2019, Article / Letter to editor (Patient Education and Counseling, vol. 103, iss. 1, (2019), pp. 159-164)
'Lessons learned from patients with access to an online self-management enhancing program for RA patients: Qualitative analysis of interviews alongside a randomized clinical trial'
Zuidema, S.U. ; Dulmen, S. van ; Nijhuis-van der Sanden, M.W.G. ; Fransen, G.A.J. ; Gaal, B.G.I. van
2019, Article / Letter to editor (Patient Education and Counseling, vol. 2019, iss. 102(6), (2019), pp. 1-16)
Efficacy of a Web-Based Self-Management Enhancing Program for Patients with Rheumatoid Arthritis: Explorative Randomized Controlled Trial
Zuidema, R ; Dulmen, S. van ; Nijhuis-van der Sanden, M.W.G. ; Meek, I ; Ende, C. van den ; Fransen, J ; Gaal, B.G.I. van
2019, Article / Letter to editor (Journal of Medical Internet Research, vol. 21, iss. 4, (2019))Background: Web-based self-management enhancing programs have the potential to support patients with rheumatoid arthritis (RA) in their self-management; for example, improve their health status by increasing their self-efficacy or taking their prescribed medication. We developed a Web-based self-management enhancing program in collaboration with RA patients and professionals as co-designers on the basis of the intervention mapping framework. Although self-management programs are complex interventions, it is informative to perform an explorative randomized controlled trial (RCT) before embarking on a larger trial. Objective: This study aimed to evaluate the efficacy of a Web based self-management enhancing program for patients with RA and identify outcome measures most likely to capture potential benefits. Methods: A multicenter exploratory RCT was performed with an intervention group and a control group. Both groups received care as usual. In addition, the intervention group received 12 months of access to a Web-based self-management program. Assessment occurred at baseline, 6 months, and 12 months. Outcome measures included self-management behavior (Patient Activation Measurement, Self-Management Ability Scale), self-efficacy (Rheumatoid Arthritis task-specific Self-Efficacy, Perceived Efficacy in Patient-Physician Interaction), general health status (RAND-36), focus on fatigue (Modified Pain Coping Inventory for Fatigue), and perceived pain and fatigue (Numeric Rating Scales). A linear mixed model for repeated measures, using the intention-to-treat principle, was applied to study differences between the patients in the intervention (n=78) and control (n=79) groups. A sensitivity analysis was performed in the intervention group to study the influence of patients with high (N=30) and low (N=40) use of the intervention. Results: No positive effects were found regarding the outcome measurements. Effect sizes were low. Conclusions: Based on these results, it is not possible to conclude on the positive effects of the intervention or to select outcome measures to be regarded as the primary/main or secondary outcomes for a future trial. A process evaluation should be performed to provide more insight into the low compliance with and effectiveness of the intervention. This can determine for whom this sort of program will work and help to fine-tune the inclusion criteria.
"Everyone sees you sitting there struggling with your food": experiences of adolescents and young adults with cerebral palsy
Remijn, L. ; Engel-Hoek, Lenie van den ; Satink, T. ; Swart, B.J.M. de ; Nijhuis-van der Sanden, M.W.G.
2019, Article / Letter to editor (Disability and Rehabilitation, vol. 41, iss. 16, (2019), pp. 1898-1905)Objective: The impact of difficulties with eating and drinking in adolescents and young adults with cerebral palsy is unknown. The purpose of this study is to find out which difficulties adolescents and young adults with cerebral palsy experience with eating and drinking in daily life and how they deal with these difficulties. The study also explores how they think about themselves with respect to eating and what does or does not help regarding social participation. Method: We collected the data from ten participants with spastic cerebral palsy (aged 15-23 years) living in the Netherlands. We used a qualitative study design with a conventional content analysis. Semi-structured in-depth interviews were used to identify meaningful factors related to eating and drinking difficulties. We coded relevant phrases from each interview and clustered and synthesized them into categories. Result: We derived four categories from the transcripts: (I) perceived eating and drinking difficulties (e.g., not managing to eat all food textures and/or choking); (II) challenges in physical and social context (e.g., accessibility of restaurants, menu supply, and/or needing assistance or not); (III) dealing with eating and drinking difficulties (e.g., adaptation, food avoidance, and/or giving up); (IV) Negative feelings about their eating and drinking (e.g., shame, frustration, fear for choking, and/or concerns about the future). One striking finding was that most participants had not recently received either monitoring or intervention for their feeding skills. Conclusion: This study shows that adolescents and young adults with cerebral palsy experience many restrictions in eating and drinking situations leading to negative feelings and lower participation levels, while little attention is directed towards these difficulties. Regular multidisciplinary rehabilitation programs should include evaluation, advice, and intervention regarding eating and drinking ability in order to increase social participation and self-management.
Is the level of eye-hand coordination and executive functioning related to performance in para table tennis players? –An explorative study
Faber, I.R. ; Pion, J.A.J. ; Willemse, Bas ; Nijhuis-van der Sanden, M.W.G.
2019, Article / Letter to editor (International Journal of Racket Sports Science, vol. 1, iss. 1, (2019), pp. 45-60)
The benefits of the 5-week Table Stars @school program as part of physical education in primary schools –A pilot intervention study
Faber, I.R. ; Pion, J.A.J. ; Nijhuis-van der Sanden, M.W.G.
2019, Article / Letter to editor (International Journal of Racket Sports Science, vol. 1, iss. 1, (2019), pp. 3-15)
Activity resumption after acquired brain injury: the influence of the social network as described by social workers.
Jellema, S. ; Erp, S.H.A. van ; Nijhuis-van der Sanden, M.W.G. ; Sande, W.M.M. van der ; Steultjens, E.M.J.
2019, Article / Letter to editor (Disability and Rehabilitation, vol. 20, (2019), pp. 1-8)
Valued activities and informal caregiving in stroke: a scoping review.
Jellema, S. ; Wijnen, M.A.M. ; Steultjens, E.M.J. ; Nijhuis-van der Sanden, M.W.G. ; Sande, W.M.M. van der
2019, Article / Letter to editor (Disability and Rehabilitation, vol. 41, iss. 18, (2019), pp. 2223-2234)
Factors influencing the implementation of Home-Based Stroke Rehabilitation: Professionals' perspective.
Veen, D.J. van der ; Döpp, C.M.E. ; Siemonsma, P.C. ; Nijhuis-van der Sanden, M.W.G. ; Sande, W.M.M. van der
2019, Article / Letter to editor (PLoS One, (2019))
Does a perceptuomotor skills assessment have added value to detect talent for table tennis in primary school children?
Faber, I.R. ; Pion, J.A.J. ; Munivrana, G. ; Faber, N.R. ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (Journal of Sports Sciences, vol. 36, iss. 23, (2018), pp. 2716-2723)
Does motor expertise facilitate amplitude differentiation of lower limb-movements in an asymmetrical bipedal coordination task?
Roelofsen, E.G.J. ; Brown, D.D. ; Nijhuis-van der Sanden, M.W.G. ; Staal, J.B. ; Meulenbroek, R.G.J.
2018, Article / Letter to editor (Human Movement Science, vol. 59, (2018), pp. 201-211)
Effectiveness of supervised home-based exercise therapy compared to a control intervention on functions, activities and participation in older patients after hip fracture: a systematic review and meta-analysis.
Kuijlaars, I.A.R. ; Sweerts, L. ; Nijhuis-van der Sanden, M.W.G. ; Balen, R. van ; Staal, J.B. ; Meeteren, N. van ; Hoogeboom, T.J.
2018, Article / Letter to editor (Archives of Physical Medicine and Rehabilitation, (2018))
Pain Exposure Physical Therapy in complex regional pain syndrome: promising enough to warrant further investigation.
Staal, J.B. ; Klomp, F.P. ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (Canadian Journal of Anaesthesia, (2018))
Pain Exposure Physical Therapy versus conventional treatment in complex regional pain syndrome type 1-a cost-effectiveness analysis alongside a randomized controlled trial.
Barnhoorn, K. ; Staal, J.B. ; Dongen, R.T.M. van ; Frölke, J.P.M. ; Klomp, F.P. ; Meent, H. van de ; Adang, Eddy ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (Clinical Rehabilitation, vol. 32, iss. 6, (2018), pp. 790-798)
Patient views regarding the impact of hydrotherapy on critically ill ventilated patients: A qualitative exploration study.
Felten-Barentsz, K. ; Oorsouw, R. van ; Haans, A.J.C. ; Staal, J.B. ; Hoeven, J.G. van der ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (Journal of Critical Care, vol. 48, (2018), pp. 321-327)
Physical exercise prior to hematopoietic stem cell transplantation: A feasibility study.
Haren, I.E.P.M. van ; Staal, J.B. ; Potting, C.M. ; Atsma, F. ; Hoogeboom, T.J. ; Blijlevens, N.M.A. ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (Physiotherapy Theory and Practice, vol. 16, (2018), pp. 1-10)
Everyday Activities for Children with Mitochondrial Disorder: A Retrospective Chart Review.
Lindenschot, M. ; Groot, I. de ; Koene, S. ; Satink, T. ; Steultjens, E.M.J. ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (Occupational Therapy International, (2018))
Everyone sees you sitting there struggling with your food”: experiences of adolescents and young adults with cerebral palsy. Disability and Rehabilitation.
Remijn, L. ; Engel-Hoek, Lenie van den ; Swart, B.J.M. de ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (Disability and Rehabilitation, vol. 21, (2018), pp. 1-8)
Interrater Reliability of the Observable Movement Quality Scale for Children.
Dekkers, L.M.A. ; Nijhuis-van der Sanden, M.W.G. ; Jonker, M. ; Swart, B.J.M. de ; Janssen, Astrid
2018, Article / Letter to editor (Physiotherapy Canada, vol. 70, iss. 2, (2018), pp. 113-119)
The perspectives and values of children with a mitochondrial disorder with regard to everyday activities.
Lindenschot, M. ; Steultjens, E.M.J. ; Zajec, J. ; Nijhuis-van der Sanden, M.W.G. ; Koene, S. ; Groot, I. de
2018, Article / Letter to editor (Journal of Developmental and Physical Disabilities, (2018), pp. 1-26)
The perspectives of spouses of stroke survivors on self-management – a focus group study.
Satink, T. ; Cup, Edith ; Swart, B.J.M. de ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (Disability and Rehabilitation, vol. 40, (2018), pp. 176-184)
NON-PHARMACOLOGICAL CARE IN SYSTEMIC SCLEROSIS: OPENING THE BLACK BOX
Stöcker, J.K. ; Cup, E.H.C. ; Vonk, M ; Hoogen, F van den ; Nijhuis-van der Sanden, M.W.G. ; Staal, J.B. ; Ende, C. van den
2018, Article / Letter to editor (Annals of the Rheumatic Diseases, vol. 78, (2018), pp. 112)
What moves the rheumatologist? Unravelling decision making in the referral of systemic sclerosis patients to health professionals: a qualitative study
Stöcker, J.K. ; Cup, E.H.C. ; Vonk, M.C. ; Hoogen, F.H.C. van den ; Nijhuis-van der Sanden, M.W.G. ; Staal, J.B. ; Ende, C.H.M.
2018, Article / Letter to editor (Rheumatology, vol. 2, iss. 2, (2018))
E-IMR: e-health added to face-to-face delivery of Illness Management & Recovery programme for people with severe mental illness, an exploratory clustered randomized controlled trial.
Beentjes, T.A.A. ; Goossens, P. ; Vermeulen, H. ; Teerenstra, S. ; Gaal, B.G.I. van ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (BMC Health Services Research, vol. 18, iss. 1, (2018))
Effect and Process Evaluation of e-Powered Parents, a Web-Based Support Program for Parents of Children With a Chronic Kidney Disease: Feasibility Randomized Controlled Trial.
Geense, W.W. ; Gaal, B.G.I. van ; Knoll, J.L. ; Maas, N.M. ; Kok, G. ; Cornelissen, E.A. ; Nijhuis-van der Sanden, M.W.G.
2018, Article / Letter to editor (Journal of Medical Internet Research, vol. 20, iss. 8, (2018), pp. e245)
Evaluating the Social Fitness Programme for older people with cognitive problems and their caregivers: lessons learned from a failed trial
Donkers, H.W. ; Veen, D.J. van der ; Teerenstra, S. ; Vernooij-Dassen, M. ; Nijhuis-van der Sanden, M.W.G. ; Graff, Maud
2018, Article / Letter to editor (BMC Geriatrics, vol. 18, iss. 1, (2018))
Social participation perspectives from persons with cognitive problems and their caregivers: a descriptive qualitative study
Donkers, H.W. ; Veen, D.J. van der ; Vernooij-Dassen, M. ; Nijhuis-van der Sanden, M.W.G. ; Graff, Maud
2018, Article / Letter to editor (Ageing and Society, vol. 39, iss. 7, (2018), pp. 1-27)
Valued activities and informal caregiving in stroke: a scoping review
Jellema, S. ; Wijnen, M.A.M. ; Steultjens, E.M.J. ; Nijhuis-van der Sanden, M.W.G. ; Sande, W.M.M. van der
2018, Article / Letter to editor (Disability and Rehabilitation, vol. April 17, (2018), pp. 1-12)
Self-Management Support Program for Patients With Cardiovascular Diseases: User-Centered Development of the Tailored, Web-Based Program Vascular View
Puijk-Hekman, S. ; Gaal, B.G.I. van ; Bredie, S.J.H. ; Nijhuis-van der Sanden, M.W.G. ; Dulmen, S. van
2017, Article / Letter to editor (JMIR Research Protocols, vol. 6, iss. 2, (2017))Background: In addition to medical intervention and counseling, patients with cardiovascular disease (CVD) need to manage their disease and its consequences by themselves in daily life. Objective: The aim of this paper is to describe the development of "Vascular View," a comprehensive, multi-component, tailored, Web-based, self-management support program for patients with CVD, and how this program will be tested in an early randomized controlled trial (RCT). Methods: The Vascular View program was systematically developed in collaboration with an expert group of 6 patients, and separately with a group of 6 health professionals (medical, nursing, and allied health care professionals), according to the following steps of the intervention mapping (IM) framework: (1) conducting a needs assessment; (2) creating matrices of change objectives; (3) selecting theory-based intervention methods and practical applications; (4) organizing methods and applications into an intervention program; (5) planning the adaption, implementation, and sustainability of the program, and (6) generating an evaluation plan. Results: The needs assessment (Step 1) identified 9 general health problems and 8 determinants (knowledge, awareness, attitude, self-efficacy, subjective norm, intention, risk perception, and habits) of self-managing CVD. By defining performance and change objectives (Step 2), 6 topics were distinguished and incorporated into the courses included in Vascular View (Steps 3 and 4): (1) Coping With CVD and its Consequences; (2) Setting Boundaries in Daily Life; (3) Lifestyle (general and tobacco and harmful alcohol use); (4) Healthy Nutrition; (5) Being Physically Active in a Healthy Way; and (6) Interaction With Health Professionals. These courses were based on behavioral change techniques (BCTs) (eg, self-monitoring of behavior, modeling, re-evaluation of outcomes), which were incorporated in the courses through general written information: quotes from and videos of patients with CVD as role models and personalized feedback, diaries, and exercises. The adoption and implementation plan (Step 5) was set up in collaboration with the members of the two expert groups and consisted of a written and digital instruction manual, a flyer, bimonthly newsletters, and reminders by email and telephone to (re-) visit the program. The potential effectiveness of Vascular View will be evaluated (Step 6) in an early RCT to gain insight into relevant outcome variables and related effect sizes, and a process evaluation to identify intervention fidelity, potential working mechanisms, user statistics, and/or satisfaction. Conclusion: A comprehensive, multi-component, tailored, Web-based, self-management support program and an early RCT were developed in order to empower patients to self-manage their CVD.
Experiences of Participants in a Self-Management Program for Employees with Complaints of the Arm, Neck or Shoulder (CANS): A Mixed Methods Study
Detaille, S.A. ; Hutting, N. ; Heerkens, Y.F. ; Engels, J.A. ; Staal, J.B. ; Nijhuis-van der Sanden, M.W.G.
2017, Article / Letter to editor (Journal of Occupational Rehabilitation, vol. 27, (2017), pp. 35-48)
Social participation of people with cognitive problems and their caregivers: a feasibility evaluation of the Social Fitness Programme
Donkers, H.W. ; Veen, D.J. van der ; Vernooij-Dassen, M. ; Nijhuis-van der Sanden, M.W.G. ; Graff, Maud
2017, Article / Letter to editor (International Journal of Geriatric Psychiatry, vol. 32, iss. 12, (2017), pp. 50-63)
Self-made & sound: e-health self-management support programs for patients with chronic conditions
Gaal, B.G.I. van ; Bredie, S.J.H. ; Goossens, P. ; Repping-Wuts, H ; Dulmen, S. van ; Nijhuis-van der Sanden, M.W.G.
2016, Article / Letter to editor (Journal of Advanced Nursing, vol. 72, (2016), pp. 82)
Testing an online self-management program for patients with CVR: an explorative RCT
Puijk-Hekman, S. ; Gaal, B.G.I. van ; Bredie, S.J.H. ; Nijhuis-van der Sanden, M.W.G. ; Dulmen, S. van
2016, Article / Letter to editor (Journal of Advanced Nursing, vol. 72, (2016), pp. 82)
The evaluation of an e-supported Illness Management and Recovery program for patients with SMI
Beentjes, T.A.A. ; Gaal, B.G.I. van ; Goossens, P. ; Nijhuis-van der Sanden, M.W.G.
2016, Article / Letter to editor (Journal of Advanced Nursing, vol. 72, (2016), pp. 82-83)
Evaluating an online self-management program for patients with RA: an explorative RCT
Zuidema, R ; Gaal, B.G.I. van ; Dulmen, S. van ; Repping-Wuts, H ; Nijhuis-van der Sanden, M.W.G.
2016, Article / Letter to editor (Journal of Advanced Nursing, vol. 72, (2016), pp. 82)
How the Illness Management and Recovery Program Enhanced Recovery of Persons With Schizophrenia and Other Psychotic Disorders: A Qualitative Study
Langen, W.J.M. van ; Beentjes, T.A.A. ; Gaal, B.G.I. van ; Nijhuis-van der Sanden, M.W.G. ; Goossens, P.
2016, Article / Letter to editor (Archives of Psychiatric Nursing, vol. 30, iss. 5, (2016), pp. 552-557)This study aims to describe how the Illness Management and Recovery program enhanced recovery of persons with schizophrenia and other psychotic disorders from their own perspective. Participants valued learning how to divide huge goals into attainable steps, how to recognize and prevent a relapse by managing symptoms, practicing skills, and talking openly about illness related experience. They learned from the exchange with peers and from the information in the IMR textbook. Nurses should have continuous attention and reinforcement for progress on goals, skills practice and exchange of peer information. A peer-support specialist can contribute to keep this focus. (C) 2016 Elsevier Inc. All rights reserved.
Narrative exposure therapy for posttraumatic stress disorder associated with repeated interpersonal trauma in patients with severe mental illness: a mixed methods design
Mauritz, MW ; Gaal, B.G.I. van ; Jongedijk, RA ; Schoonhoven, Lisette ; Nijhuis-van der Sanden, M.W.G. ; Goossens, P.
2016, Article / Letter to editor (European Journal of Psychotraumatology, vol. 7, (2016))Background: In the Netherlands, most patients with severe mental illness (SMI) receive flexible assertive community treatment (FACT) provided by multidisciplinary community mental health teams. SMI patients with comorbid posttraumatic stress disorder (PTSD) are sometimes offered evidence-based trauma-focused treatment like eye movement desensitization reprocessing or prolonged exposure. There is a large amount of evidence for the effectiveness of narrative exposure therapy (NET) within various vulnerable patient groups with repeated interpersonal trauma. Some FACT-teams provide NET for patients with comorbid PTSD, which is promising, but has not been specifically studied in SMI patients. Objectives: The primary aim is to evaluate NET in SMI patients with comorbid PTSD associated with repeated interpersonal trauma to get insight into whether (1) PTSD and dissociative symptoms changes and (2) changes occur in the present SMI symptoms, care needs, quality of life, global functioning, and care consumption. The second aim is to gain insight into patients' experiences with NET and to identify influencing factors on treatment results. Methods: This study will have a mixed methods convergent design consisting of quantitative repeated measures and qualitative semi-structured in-depth interviews based on Grounded Theory. The study population will include adult SMI outpatients (n = 25) with comorbid PTSD and receiving NET. The quantitative study parameters will be existence and severity of PTSD, dissociative, and SMI symptoms; care needs; quality of life; global functioning; and care consumption. In a longitudinal analysis, outcomes will be analyzed using mixed models to estimate the difference in means between baseline and repeated measurements. The qualitative study parameters will be experiences with NET and perceived factors for success or failure. Integration of quantitative and qualitative results will be focused on interpreting how qualitative results enhance the understanding of quantitative outcomes. Discussion: The results of this study will provide more insight into influencing factors for clinical changes in this population.
Implementation and process evaluation of the energetic study
Veenhuizen, Y ; Cup, Edith ; Satink, T. ; Groothuis, JT ; Engelen, B.G.M. van ; Nijhuis-van der Sanden, M.W.G. ; Guerts, A
2016, Article / Letter to editor (Neuromuscular Disorders, vol. 26, (2016), pp. S147-S148)

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