Title: | How is self-management perceived by community living people after a stroke? A focus group study |
Author(s): | Satink, T. ; Cup, Edith ; Swart, B.J.M. de ; Nijhuis-van der Sanden, M.W.G. |
Publication year: | 2015 |
Source: | Disability and Rehabilitation, vol. 37, iss. 3, (2015), pp. 223-230 |
Number of Pages: | 8 p. |
ISSN: | 0963-8288 |
DOI: | https://doi.org/10.3109/09638288.2014.918187 |
Publication type: | Article / Letter to editor |
Please use this identifier to cite or link to this item : https://hdl.handle.net/20.500.12470/1479 ![]() |
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Lectorate : | Neurorevalidatie |
Journal title : | Disability and Rehabilitation |
Volume : | vol. 37 |
Issue : | iss. 3 |
Page start : | p.223 |
Page end : | p.230 |
Abstract: |
Purpose: Self-management has become an important concept in stroke rehabilitation; however, the way that people post-stroke reflect on the concept of self-management has not yet been studied. This qualitative study explored the reflections of persons post-stroke on self-management, readiness and needs in self-management support. Methods: Focus group interviews were conducted with 16 community living stroke survivors (53-84 years of age). Both verbal questions and photo elicitations were used to collect data. A constant comparative framework was used for the analysis. Result: Participants described their self-management as a complex, long-term, personal learning process. Post-discharge, participants were not ready to self-manage. Aside from individual self-management, participants also mentioned co-management with relatives. Relatives could provide support, but they also limited the development of participants' self-management skills. Participants missed having professional support post-discharge and would have appreciated additional psychological and emotional support in their process of self-management. Conclusion: Self-management post-stroke is complex. Stroke self-management programmes may be optimised when integrating role and emotional management in addition to medical management. Although readiness to self-manage differs among individuals, support should start as soon as possible and continue post-discharge in people's personal environments. Self-management programmes should not only focus on self-management of stroke survivors but also on co-management with relatives.
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